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NF-1 Cognitive and Behavioral Evaluation Study NF-1 Cognitive and Behavioral Evaluation Study

Participation Opportunity
 

The purpose of the study conducted by the Yale Child Study Center is to determine how strengths and weaknesses in cognitive-behavioral development change as those with NF-1 get older.
 
 

Requirements:

(1) Ages 4 years to 15 years (2) Clinical diagnosis and/or DNA diagnosis of NF-1

Evaluation includes:

(1) Stanford-Benet (4th edition) assessment of intellectual ability (2) Vinclad Adaptive Behavior Scale (parent interview of behavior) (3) Clinical Evaluation of Language (possible)

Additional Information:

(a) There is NO charge for the evaluation. (b) Testing takes about 1 1/2 hours. (c) No laboratory tests will be performed as part of the study. (d) Reports for parents/teachers/caregivers take about 2 months and are sent to parents. (e) Once enrolled, children and adolescents will be tested every 2 years.

Principal Investigator:

Gene Fisch, Ph.D. (psychologist) Yale Child Study Center Yale University School of Medicine New Haven, Connecticut.  e-mail: gene.fisch@yale.edu